Wednesday, February 10, 2010

Today's the day

We got to the hospital this morning only to find out that an emergency has came up, so we are pushed back till they take care of this. They should start about noon now, so as things progress I'll be writing more. Kayla is doing great, not the least bit scared. So that is great, please say a prayer for her please. Thanks!

Tuesday, February 9, 2010

Free Day


Today was a free day we didn't have any appt's. This morning we got up an had breakfast here at the hotel, they had the works now, eggs, bacon, french toast, biscuits, gravy, cereal, fruit, bagels, and the list goes on. Needless to say we got stuffed, came back to the room and took a nap. Then when we got up we did today's school work then went to the mall to the build-a-bear workshop, that is the cutest place although not easy on the pocket book. I say honestly say our new friend named Dallas, was the most expensive teddy bear I have ever seen much less bought. But Kayla loves him and that is all that matters. Then we came back to the room and had chicken cordon bleu for dinner with my parents. Watched a little tv, now Kayla's other grandparents and her big brother Ricky showed up about 9pm, visited a little now everyone is asleep but me. I doubt if I will sleep at all tonight, this is so scary. I am so proud of how strong Kayla is I wish I had half the courage as she does. Anyhow, I'm gonna try to get some sleep. Please pray, pray, pray for us! Thanks!!

Monday, February 8, 2010

Office Visit.


Today we had a late breakfast at Denny's, then came back to the room and did some school work, then we went over to the hospital for the pre-op stuff, they took a chest x-ray, and EKG, then we got to meet the cath cardiologist, he explained over basically what we already knew. He said on Wednesday he will do that TEE in the cath lab, and they put her to sleep the put this scope that goes down her throat to take a picture from the back side of the heart, it takes a in detail picture that he can look at to determine the exact size, location, and how close to a valve the hole is located then he will decide if he can close it in the cath lab, in a procedure that they go through the artery in her leg and put in a device that way to close it,and she will just have to spend the night and get to go home Thursday; if not he will just let her go, and we will meet with the surgeon and return on Thursday for the surgery. I am so hopeful that this can be done in the cath lab, and she doesn't have to go through the surgery but I am scared to get my hopes up. She will be ok either way, she's strong and has God on her side so I will just leave it in hands.

Sunday, February 7, 2010

We have arrived!

Today came so fast I can't believe the time is already here. This morning Kayla & Ric got baptised at church, it was great, I am so proud of the both of them. After church we left, we got here about 5 and got my parents checked into their room, now we just made it to our room, its a real nice nice place, actually I was surprised we always end up with crappy hotels, we are staying at the Hilton Homewood Suites. Its about 1/2 mile from the hospital. Kayla is still doing great, doesn't seem the least bit worried at all. I'm missing my boys already, I can't imagine having to be away from them so long, that hurts in itself, but I explained to them what was going on and that we had to get sisters heart fixed, and they are ok with that, and told me they would be just fine. They are at my sisters and she will take great care of them so that is one less worry for me, but I still miss them. Well gonna relax a little and watch the Super Bowl--GO SAINTS!!!, then when that is over we are going to go search down a Taco Cabana. I'll be updating more tomorrow-- we go meet the Dr. at 2. Please keep my baby in your prayers!!

Thursday, January 14, 2010

A little more info..

Today Dallas called again, she had a little more info for me, she said the pre-op date has been changed to the 8th at 3:30, with Dr. Zellers after that Kayla will get to leave and have all day the 9th to do whatever we want, I was thinking Build-A-Bear workshop, or something fun for her, I guess that won't be hard to figure out, seeming Odessa has nothing compared to Dallas. We will have to be back the morning of the 10th for the cath lab procedure, she said how that will work is, they are doing a procedure called a TEE, (transesophageal echocardiogram)-basically this is just for a good look at the heart where they can determine the exact size of the hole, and how much rim is around it, look at the amount of enlargement, this is a routine procedure not really meaning it will be able to be closed via cath lab, but the surgeon has to have this info anyhow. While they are doing this he will determine if he thinks he can close it, they said someone will come out to the waiting room and let us know if he is going to close it or not, if so he will do that then while she is already under anesthesia, if not they will admit her and she will have surgery the following morning with Dr. Kristine Guleserian. So now I don't know really what to think, I hope and pray that this can be done without the surgery but at the same time I am scared to get my hopes up, so all I can do is hope for the best. Ric is becoming an emotional wreck, and it hurts that I can't really do much to comfort him, but like he said what don't kill us will only make us stronger! His boss is being great about it all though he told him to take off as much time as it takes to be there with her, so thats good anyhow. My mom and dad will be there with us also, and Ric's Dad and his wife will be also, and probably my Aunt Shirley as well, so at least we will have plenty of support. Anyhow, just wanted to fill ya'll in on the new info, thanks for the prayers, We love you all.

Wednesday, January 13, 2010

The date (FINALLY)

We finally got a call yesterday from Dallas Children's Hospital, she has to be there on February 9th for the inital consultation, on the 10th they will try to close it in the cath lab, although he isn't sure if he will be able to. On February 11th the actual open heart procedure will take place if it wasn't closed in the cath lab. So at least we can put our minds to rest about when it will be, now we just got to wait, I am so ready to get all this taken care of and know that my baby is ok, I try not to just sit and worry but the closer it gets the harder it seems. Kayla still doesn't seem scared at all, so that's good, I guess she really don't understand in detail what lies ahead. Please continue your prayers we really need them.

Tuesday, January 5, 2010

still waiting..

Just wanted to write a quick update, I talked to the Dr in Dallas yesterday, she said they have been off all week due to the holidays, so she hasen't got it scheduled, but she should know mid-week, no later the end of the week, so hopefully we will have a date soon. I wish they wouldn't take there time, but I guesss when you go to school 8 years to be a Dr, they think they can work at their convience. Although I am scared to death, I wish we could just get it over with so I know my baby is going to be ok. Please continue your prayers we really appreciate them and definately need them.