I just couldn't sit here and wonder any more, so I took it upon myself to call the hospital in Dallas and see if they might be able to tell me a date. After being transferred and put on hold for 2 hours, I FINALLY got to the right department, and was told the lady that handles the scheduling was at lunch and she would have her call me back. Surprisingly she did-- she told me they did receive Kayla's info, but based on the info they had they do NOT think this will be able to be closed in the Cath Lab so they are now waiting on the cardiologist in Odessa to mail him the actual cd of the echo cardiogram, and once he receives it he will review it and decide for sure if he thinks it is possible to attempt the cath procedure, which if effective would mean they wouldn't have to do the open heart procedure. But if he doesn't think it is able to be done through the cath lab, he will just skip that procedure completely, and schedule directly for surgery to avoid putting her in more pain and procedures than necessary. So she said they should receive it and he would be able to read it and decide for certain sometime next week, and she will call me with the date just as soon as hes done. So I guess until then I will continue to sit here in a total state of loss, and just wonder.
On the bright side we have been going to church as a family, even went and bought a new Bible today, we have decided to invited God into our family and our hearts for actually all of this is in his hands. I can already see things in our lives changing, and I have complete faith that he is going to hold Kayla's hand throughout this whole ordeal.
Thursday, December 17, 2009
Wednesday, December 9, 2009
The Beginning
Kayla is a 9 year old beautiful little girl , honor roll student, that loves to read, sing, loves animals and want to grow up and be a vet, she is my first baby and the love of many peoples lives. She has always been the healthiest child out of my four so we have always been so grateful for that. Little did we kn ow what was to come....
On November 16, 2009 we changed pediatricians and went to meet the new one, Dr. Benigno, all at a hope to get Mitch to an asthma specialist. Never expecting this would be a day that would change our lives in a instant. Upon examination of Kayla, who I informed him was healthy as can be, he discovered a heart murmur, and told us he would be sending her for an echo cardiogram, an other one of our children has a heart murmur that has been seen by a specialist so at this point I didn't get to concerned. On November 20th we went to the hospital to have the echo cardiogram done, but they didn't tell us no info, and said our doctor would get the results and call us, so we sat here and waited, and waited and waited for the doctor to call with the results. On December 3rd, he finally called and said that they needed to send her to a cardiologist, and more less left it at that. On December 7th, we finally after alot of worrying we had the appointment with Specialist, and this is where my families life got turned upside. We found out that Kayla has a 19mm hole in the upper part of the heart that separates the two chambers, the right side of the heart is also enlarged twice the size it should be. They call this Atrial Septal Defect. This will require surgery to fix, and will only get worse if not. So we have elected to move forward with the surgery, they are in the process of scheduling it now, however they are thinking it will probably be the later part of January before it can be done, due to the fact that it requires so many doctors present. Kayla asked the doctor all sorts of questions and he was very honest with her, she knows what is fixing to happen and seems to be a very strong girl (I wish I could say the same for myself) The surgery will take place at Dallas Children's Hospital in Texas, they are ranked 6th in the U.S., so I am sure she is being sent to great hands. In the meantime the doctor said let Kayla continue her regular schedule and activities, which is so hard for me to allow knowing this stuff, I wish I could just hold her and never let her outta my sight till this is all over with, but I guess that would be impossible. They say after surgery that this will be corrected permanently, and that she won't have any other problems from it, as for the enlargement that will go down on its own 6 months after surgery. So for now I will sit, worry and wait for the phone call from Dallas that will give us the date for the surgery. Please keep her in your prayers!! I will update as often as I find out info through out this whole journey to her healthy heart!
On November 16, 2009 we changed pediatricians and went to meet the new one, Dr. Benigno, all at a hope to get Mitch to an asthma specialist. Never expecting this would be a day that would change our lives in a instant. Upon examination of Kayla, who I informed him was healthy as can be, he discovered a heart murmur, and told us he would be sending her for an echo cardiogram, an other one of our children has a heart murmur that has been seen by a specialist so at this point I didn't get to concerned. On November 20th we went to the hospital to have the echo cardiogram done, but they didn't tell us no info, and said our doctor would get the results and call us, so we sat here and waited, and waited and waited for the doctor to call with the results. On December 3rd, he finally called and said that they needed to send her to a cardiologist, and more less left it at that. On December 7th, we finally after alot of worrying we had the appointment with Specialist, and this is where my families life got turned upside. We found out that Kayla has a 19mm hole in the upper part of the heart that separates the two chambers, the right side of the heart is also enlarged twice the size it should be. They call this Atrial Septal Defect. This will require surgery to fix, and will only get worse if not. So we have elected to move forward with the surgery, they are in the process of scheduling it now, however they are thinking it will probably be the later part of January before it can be done, due to the fact that it requires so many doctors present. Kayla asked the doctor all sorts of questions and he was very honest with her, she knows what is fixing to happen and seems to be a very strong girl (I wish I could say the same for myself) The surgery will take place at Dallas Children's Hospital in Texas, they are ranked 6th in the U.S., so I am sure she is being sent to great hands. In the meantime the doctor said let Kayla continue her regular schedule and activities, which is so hard for me to allow knowing this stuff, I wish I could just hold her and never let her outta my sight till this is all over with, but I guess that would be impossible. They say after surgery that this will be corrected permanently, and that she won't have any other problems from it, as for the enlargement that will go down on its own 6 months after surgery. So for now I will sit, worry and wait for the phone call from Dallas that will give us the date for the surgery. Please keep her in your prayers!! I will update as often as I find out info through out this whole journey to her healthy heart!
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