April 8, 2010

Well yesterday we took Kayla for a 6 wk check-up and the echo showed everything was ok, but the EKG was showing the heart was firing to much, so he put her on a heart monitor for 24hrs. Today we went back and turned it in, they just called 4 hrs later and said everything showed fine. Thank you God, it is finally over. She will have to have one more check-up in Oct. but that should be it. This was the hardest thing I have dealt with this far, well Ric's wreck was horrible to, but I am so thankful that this is finally over.

Feb 25th

Today I had to take Kayla back to cardiologist, she had a stitch that was coming through the skin. They stitched her up on the inside, but on the outside they used that dermabond stuff, its kinda like super glue. He said she is looking great, so that was great news. He took her off the prevacid, and the Motrin, so now she will only take the Lasix once a day. I know she is happy about that because she HATES taking medicine, she thinks it is suppose to taste good, I tried to explain to her that no medicine taste good, but she don't quiet grasp that concept. That incision where the drain tube was is still open quiet a bit, and he is still concerned about it getting infected, so I am not sure if he wants her to go back to school on Monday or what. I completely forgot to ask him also, so I guess in the morning I will call and ask. I am so scared to send her back, I wish I didn't have to at all, but her teachers are great and I am sure they will keep a good eye on her. I know she is ready to go back, she is so bored here at the house. We finally went back to church last, she wore her little mask, and did great, so I am sure she will do the same at school, I am just so worried. I'll write more tomorrow after I talk to the Dr.. Goodnight All & God Bless!!

Feb 22nd

Kayla is still doing great, she is starting to walk a little more straight. She is so ready to go back to school, and I am so scared about that as well. I guess as a mother I just live in fear. She is all caught up on school work, so I don't see what the rush is, but I guess she misses her friends and teachers. The cut and drain tube incision are healing great, Kayla says they just look like a scratch she got if she fell down, so that's great maybe she won't be self conscious about it. I kinda worry about that too, The Dr's said as she grows this will get smaller and she should be able to wear V neck shirts without it being seen, so that's good. Well I will go for now and hope you all have a great day!

Feb 18th

Today Kayla woke up almost back to normal, she is still walking slouched over but that is just from the soreness. She didn't throw up all night or any today, and she is still drinking and eating so thats good, we have to go see the Dr. again on March 5th, unless she happens to get worse. She can go back to school on the 1st, which is going to be so scary for all of us. I live in constant fear right now of something happening. I wish this was easier on all of us. I think all of the constant worrying, and exhausted caught up with me today, I got up from the kitchen table, and instantly knew I was real sick. I got to the recliner and passed out, luckily my niece was here to help me, she said it scared her, but she knew I was ok. After that I ate some girl scout cookies, and drank some milk and felt alot better. So now I am going to bed, and she is going to stay here and help me. Goodnight & God Bless!

Feb 17th

Today was very hectic, Kayla woke up throwing up, and about noon it got to where it was non-stop, so I called the cardiologist here, and he said to bring her in. We got there and he did an EKG, and Echo, and said everything looks great with her heart, but he thinks she has a stomach bug, and she is dehydrated, so we sat in his office taking one sip of Gatorade every 5 mins, we did this 2 hours, and he said he would let her go home as long as she continued to do this. If she continued to throw up, in the morning he would admit her to the hospital here. She threw up a few more times this evening, but took a 4 hour nap, and when she got up seemed to be feeling alot better. Hopefully its gone.

Tuesay- Feb 16th

This morning we took Kayla for a follow up appointment, they said everything looks great. The took the 3 stiches out of the drain tube incision, and took an x-ray, said the enlargement is already going down. So thats good. They did some labs and said she is low on iron, because she did not have a blood transfusion, this is normal, she will just take a vitamin with iron for the next 6 months, we are headed home and can't wait to see the boys, should be there about 7pm.

Just resting

Today we haven't did much, just hang out in the room and watch tv, Kayla is doing great, she is working on some homework, and eating, and up trying to clean up the hotel room, she says we put stuff in the wrong place, like the soap isn't suppose to sit on the sink its suppose to sit in the soap dish. She is so funny. Talked to my sister today, she said the boys are still doing good, and they are so ready for us to be home. I am too, I miss them so much, I have never been away from them for this long, and hope I never have to again. We have to be a the hospital at 10:30am for the follow up visit then we will be headed home. FINALLY!! I am so grateful that this is all over with. We will still have a follow up visit with her cardiologist in Odessa on the 25th, but I am sure she will continue to do great. She will be outta school about 3 more weeks, and will not be able to participate in p.e., or any other activities for 6 wks. Right now they do not want her around anyone really, especially large crowds. And if she is she has to wear a mask to avoid germs. Otherwise she is back to normal. Thanks again for all the prayers, calls, and txt's, We couldn't have got through this so easy without such a great support system, and the love of family and friends.